Activities

As described by the charity on the register

Promote research for the benefit of the public into the cause, nature, treatment and cure of Epidermolysis Bullosa and other related medical conditions.To relieve physical and mental illness and distress among persons suffering from EB by the provision of practical advice, guidance and support for the persons responsible for their welfare

Latest income

£18.2m

Expenditure

£18.6m

Financial year end

2024-12-31

Income & spending history

As reported to the Charity Commission, by financial year end

Year end Income Expenditure income spend
2020-12-31 £11.4m £13.8m
2021-12-31 £13.3m £12.5m
2022-12-31 £16.4m £16.0m
2023-12-31 £18.2m £18.9m
2024-12-31 £18.2m £18.6m

Latest detailed return

Year end 2024-12-31

Income mix

Donations & legacies £5.7m
Charitable activities £31k
Trading £12.3m
Investment income £43k
Total income £18.2m

Spending

Charitable spend £3.8m
Raising funds £14.7m
Grants to institutions £534k
Governance £25k
Total expenditure £18.6m

Balance sheet

Reserves £1.0m
Total funds £3.2m
— restricted £375k
— unrestricted £2.8m
— endowment £0
Total assets £3.2m
Cash £2.8m

People

Employees 362

Classification

The charity's own register classification

What it does

  • The Advancement Of Health Or Saving Of Lives
  • Disability
  • Other Charitable Purposes

Who it helps

  • Children/young People
  • People With Disabilities

How it works

  • Makes Grants To Individuals
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research

Source: Charity Commission for England and Wales register, 2026-07-28. Detailed figures as filed in the charity's annual return. Contains public sector information licensed under the Open Government Licence v3.0.